Local Man Swims The Channel To Raise Money For Eastbourne Based Charity
Epilepsy Lifestyle was founded in March 2014 by Eastbourne Mum, Marie Baker. Marie has a 12 year old daughter with Dravet Syndrome, which is a life-limiting neurological condition that causes severe epilepsy. Marie’s daughter Aimee has very uncontrolled seizures, sometimes lasting hours. It was Aimee’s condition and the lack of practical support that prompted Marie to set up Epilepsy Lifestyle.
Epilepsy affects approximately 1 in every 103 people in the UK and SUDEP (Sudden Unexpected Death in Epilepsy Patients) affects 1 in every 1000 epilepsy patients every year. There are a number of different monitoring systems that can alert to night time seizures, the peace of mind that a monitor/sleeping solution can give to a family or epilepsy patient can not be underestimated. No one should ever have to wake up to find their child or family member has passed in the night from a seizure.
Epilepsy Lifestyle gives epilepsy patients and their families a choice of 6 different monitors/sleeping solutions and they work with their beneficiaries and suppliers to ensure the most appropriate piece of equipment is chosen specifically for their circumstances and type of epilepsy. The monitors/solutions range in price from £50, right up to £850 and all work in very different ways.
Epilepsy Lifestyle initially launched as an East Sussex Charity providing local epilepsy sufferers with monitoring equipment, potentially life saving to those who are affected by night time seizures. Thanks to a number of grants the charity were soon able to branch into West Sussex and the surrounding areas. After 2 very successful years Epilepsy Lifestyle expanded their services Nationally.
About the challenge:
Epilepsy Lifestyle were contacted by local lad, Jack Armstrong, who was planning to swim the English Channel and wanted to raise money for a local charity. Jack’s sister had been diagnosed with epilepsy a couple of years ago so fundraising for Epilepsy Lifestyle seemed like a good fit.
Jack has undertaken a number of challenges in the past, including The London Marathon in 2012 and an Ironman competition in 2014. Jack read a book entitled “Man vs Ocean” last year and was inspired to commit himself to the completing the channel swim from that point.
Jack is busy training hard but doesn’t have a definite date for his challenge as it all depends on the weather and tides – but he has been given a window of between 23 to 28 July.
Jack has already raised £550 of his £750 target but you can still sponsor Jack via his Virgin Money Giving page by following this link: https://uk.virginmoneygiving.com/JackArmstrong